Party of 2..

Yesterday, I got the call. Max has Congenital TTP too.  Not that Jerrad and I were at all surprised about the test results, we honestly would have been surprised if they would have came back negative.  I was however, surprised at how fast the test results came back!  So the plan for Max is yearly exams at DeVos, and a standing order at the local lab if I ever feel the need for him to have his levels checked.  Sophie and Dixon will be tested in the next week or two, but I honestly don't think they have it.

Kyin had his second set of labs today, again they looked great!  Platelets are up to 238,000, Hemoglobin dropped to 10.8 (but he did decrease his prednisone, so that could be why), and his WBCs also dropped to 11,180.  So over all, he's looking great!  He'll still be getting his fresh frozen plasma next week, hopefully that will be all he needs to kick him into full blown remission.  

And I have to say, thank you God that we have medical insurance.  Medical bills are starting to roll in...holy geez. That's all I have to say about those!  I have joined a TTP support group on Facebook, majority of the members have the acquired type though.  Treatment for those flair ups consists of week-two week long in patient stays with plasma daily.  They were talking about their bills for a flair up-$200,000-$300,000!! Talk about sticker shock.  We're very thankful that Jerrad is being medically retired from the Navy and we get to keep Tricare.  

Speaking of Jerrad, he received his numbers from the VA-he got 90%!  That's great, considering we thought he would maybe get 60% and we'd have to fight after he was out to get what we thought he deserved.  We were pleasantly surprised when he got word that he got 90%.  So he'll be home no later than April!